Voices of UC Survey Shows Need for Patients with Ulcerative Colitis to Speak Up about Debilitating Digestive Disease
HORSHAM, Pa., Oct. 8 /PRNewswire/ -- People living with ulcerative colitis (UC) say greater understanding is needed about the life-altering nature of this chronic inflammatory bowel disease that affects approximately 500,000 Americans. Data released today from Voices of UC (voicesofuc.com), an initiative developed to educate and raise awareness of the condition, captures the dual perspectives of people who live with the condition and the physicians who treat it. These new survey findings illustrate the physical and emotional toll of the disease, as well as a disconnect in the way patients and physicians discuss and manage the condition.
The Voices of UC survey was conducted by Manhattan Research and is a collaborative effort between Centocor Ortho Biotech Inc. and the Digestive Disease National Coalition (DDNC), a non-profit advocacy organization comprised of the major national voluntary and professional societies concerned with the many diseases of the digestive tract. The 2010 Voices of UC initiative is a follow-up to a 2005 survey to look at what has changed and what struggles remain for people living with UC. While 10 percent fewer patients were hospitalized with UC-related issues in 2010, some aspects of living with UC have not changed. In fact, a full one-third of patients still get an incorrect diagnosis before a doctor correctly identifies their condition as UC, and getting the right diagnosis continues to take well over a year.
Actor and program spokesperson James Van Der Beek, formerly of the television programs "Dawson's Creek" and "Mercy," has wit